Privacy Statement

Apellis UK Ltd

Dated: August 14, 2023

Apellis UK Ltd, based at 6th Floor, 2 Kingdom Street, Paddington, London, United Kingdom, W2 6BD (“we”, “us” and “our”) as the data controller responsible for this website recognizes the importance of and is committed to respecting and protecting your privacy. This Privacy Statement applies to our collection and use of personal information through our website dryamd.uk (the “Site”) and through our offline business-related interactions with you.

The purposes for which we collect your personal data:

We process your personal data in order to provide you withinformation with regard to Age-Related Macular Degeneration (AMD) and Geographic Atrophy (GA) diseases and all the related issues (e.g. diagnosis & monitoring, treatment methods etc.).

The Site may collect information that could be potentially personally identifiable about your visits without you actively submitting such information. Unidentified information may be collected using various technologies, such as cookies. Cookies are small text files that are stored on computer hard drives by websites that you visit. To find out more about cookies, including how to see what cookies have been set and how to manage and delete them, click at the following link "Cookie statement".

We collect the following personal information about you:

•           e-mail address (*)

•           First and last name (*)

•           IP address

•           Your background/user profile (*): (e.g. HCP, non-HCP)

•           Subject matter (*).

Failure to provide the personal information with an (*), prevents Apellis from adequately responding to your query or request.

We collect this data from:

Non health care personal professionals (e.g. a patient)  (hereinafter “You” )

We rely on the following legal basis according to UK GDPR:

There are a number of lawful reasons for us to process your personal data :

Your consent. However, you may withdraw your consent at any time by sending us an e-mail at :  privacy@apellis.com

Each processing of your personal data that has taken place by the time of withdrawal of your consent is lawful.

We retain your personal data for:

For duration of service delivery.

We share your personal data with:

Subsidiaries/affiliated companies and third party processors such as IT services and website hosting companies, (internet) connectivity providers.

Your rights

You can access all your personally identifiable information that we collect online. You may also demand the deletion of your personal data unless the applicable laws and regulations oblige us to store your personal data.

You can request to be provided with information about data which we store/process about you. In addition, you have the right to have any personal data blocked or deleted, to object to the processing of your data, to have any incorrect data corrected and the right to have your data transferred to a third party.

You can correct factual errors in your personally identifiable information by sending us an email that credibly shows the error.

To protect your privacy and security, we will also take reasonable steps to verify your identity before making corrections. Should you have other questions or concerns about this privacy statement or want to have your data deleted from our database, please send an email to privacy@apellis.com.

You also have the right to lodge a complaint with the UK supervisory authority. For more information, please visit here: https://ico.org.uk/global/contact-us/.

We may update or amend this statement at any time by posting the amended statement to the Site.

International data transfers 

Apellis uses servers and other storage facilities in the United States and EU. Apellis may transfer personal information outside of its country of origin for the purposes, and in the manner, set out in this privacy statement, including for processing and storage by service providers and affiliates in connection with such purposes. In all situations, Apellis takes reasonable steps to ensure that your privacy is protected. Such steps include, but are not limited to, implementing privacy, security, and contractual controls, as well as steps noted in this privacy statement, as required by applicable law.

Apellis endeavors to obtain assurances from its service providers and affiliates that they will safeguard personal information consistent with this privacy statement. An example of appropriate assurances that may be provided by service providers and affiliates includes a contractual obligation that they provide at least the same level of protection as is required by Apellis’s privacy principles set out in this privacy statement. Where Apellis has knowledge that a service provider or affiliate is using or disclosing personal information in a manner contrary to this privacy statement, Apellis will take appropriate steps to prevent or stop the use or disclosure.

For individuals in the UK, the following may apply in addition to the above.

Transfers of your personal information may be made to entities located outside the UK, including entities located in the United States, for processing consistent with the purposes above. Apellis will implement appropriate contractual measures to ensure that the relevant Apellis companies and third parties outside the UK provide an adequate level of protection to your personal information as set out in this privacy statement and as required by applicable law.

For the processing of personal information relating to the UK, Apellis has assigned a data protection officer responsible for overseeing our compliance with UK data protection law, whom you may contact at privacy@apellis.com in case of any questions or concerns regarding the processing of your personal information.

Security of your personal information

The security of your personal information is important to us. We take reasonable steps, including technical, administrative and physical safeguards, designed to protect the personal information submitted to us from loss, misuse and unauthorized access, disclosure, alteration and destruction. Such measures may include but are not limited to: the encryption of communications via SSL, encryption of information while it is in storage, firewalls, access controls, separation of duties, and similar security protocols. However, no method of security or method of transmission over the Internet is entirely secure. You should always use caution when transmitting personal information over the Internet.

You may also lodge a complaint with the UK’s data protection supervisory authority For more information, please visit here: https://ico.org.uk/global/contact-us/.

Contact Us

Before sending an e-mail, please be aware of the following:

Please DO NOT report drug safety related information, such as side effects, by sending an e-mail to info@apellis.com. If you are a patient, please contact your physician in case of adverse reactions. Please consider the pharmacovigilance data privacy statement, if you are reporting drug safety relevant events.

If you have any questions about this Privacy Statement or concerns about the way Apellis processes your personal information, or require assistance in managing your privacy choices, please get in touch with us at:

Apellis UK Ltd

6th Floor, 2 Kingdom Street, Paddington, London, United Kingdom, W2 6BR
Email: info@apellis.com

Our data protection officer can be contacted as follows:
E-mail: privacy@apellis.com

We may update or amend this Privacy Statement  at any time by posting the amended version on the Site.

UK-GA-2300059     March 2024

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